I had to take a break after the last post. I'm back now and ready to tell you my final stage. The stage I am in now. I'm keeping my fingers crossed that this is my final stage so I can close this chapter and start fresh.
So a few years have passed now since my third trauma, 9 years to be exact. I am now married to a wonderful man and have two very beautiful children. My final part began after the birth of my daughter, my second child. My pregnancy went by just fine. I ended it the same as my first one, with preecalmpsia. She was born and she was healthy and that was all that mattered. At my six week checkup I had already informed my OBGYN that I was having EXTREME pain with sex and inserting tampons. Pain so bad that I was crying. During the check-up she asked if I had natural birth or a c-section. I had a c-section, but she swore that I looked as if I had just went through a natural delivery. Inside of me, I had a quarter-size blister, almost hole, that had formed and I was very inflammed. She started me on estrogen cream to thicken my internal skin. The estrogen did fix that spot inside of me after a couple weeks but I was still having intense pain if touched. My OBGYN then referred me out to UNC hospital to Dr. John Steege. I was then seen by him (which I highly recommended him to anyone suffering from vulvar vestibulitis in North Carolina) and he said that I had a mild form of vulvar vestibulitis. I was given a compound cream, Estridal and Lidocaine, and told to try Gene's Vitamin E lotion to relieve discomfort and start physical therapy. After a year of using the compound cream, physical therapy and MANY trials with relief care, my vestibulitis has improved. Well enough to not have to even use the cream anymore. What wonderful news!!! The pain with sex and tampons is gone, all better, the vestibulitis is GONE!!!
Well actually let's back-up...
I forgot to mention that during all this I started to develop that itch again. Yes, the itch has returned. The dreaded, life altering itch that controlled my younger days is back and stronger than before. What a disappointment. It took months before I finally was switched over to the Vulvar Pain Center at UNC, but it was well worth the wait. My first appointment was yesterday with Elisabeth Johnson... I truly believe that she is an angel. She is the first person that has dealt with me that understands me. She made me comfortable, she told me things about myself that I didn't even know and she has given me hope. She has told me what she expects of me and told me that she WILL make sure that I achieve all my goals that I had started and never was able to finish. She told me that I have to heal from this and everything else that has happened to me because, well, who else is going to teach my little girl how to be a strong, independent woman.
I now know that what I am dealing with is a nerve issue. Who would have guessed that a nerve could make you itch so bad. I cannot explain to you yet how it all works, I hope to be able to eventually; remember this is a journey and we are all learning together.
Showing posts with label nerve damage. Show all posts
Showing posts with label nerve damage. Show all posts
Wednesday, September 28, 2011
My Story - Part 1
We all have our own story; no two will ever be the same.
My story starts out at the age of 4 (or so I learned yesterday with my current doctor that this is when my story began). I was born with vesicoureteral reflux. Long story short, my bladder valve did not close properly due to the fact that it was under developed. That led to an in office catheterization, the void test. Still to this day, I sit here wondering why any doctor in their right mind would have a 4 year old in office, awake, having this procedure done. I remember the day like it was yesterday. Laying on the table, my dad in a chair beside the table, and the doctor and nurse ready to insert the tube inside of me. After inserting the first tube, I went crazy, to be expected. Most adults cannot stand a catheter being inserted in them, but I was only a child. I screamed and kicked and the doctor called for more nurses to come in and hold me down. They did as he told them, and each held an arm and leg. Just sit back and imagine this... you as a child and this happening to you. You have lost all control of your own body. This was the first time that I had control taken away from me. It's hard to take it all in even to this day. Moving along, I was then put in the hospital, put to sleep, and had the procedure. This is how it should have been to start with. No trauma, nothing scary, the hospital made it fun. I am sure you are thinking, "What parent would allow this??" Well, as any parent would, mine wanted me better. I am not sure that they even understood what was going to take place. I place no blame on them, I just wonder what that doctor was thinking. Fast-forwarding 23 years later, my doctor thinks that this in office procedure is when I had nerve damage from the catheter. This event changed the way I feel and see "normal".
My story starts out at the age of 4 (or so I learned yesterday with my current doctor that this is when my story began). I was born with vesicoureteral reflux. Long story short, my bladder valve did not close properly due to the fact that it was under developed. That led to an in office catheterization, the void test. Still to this day, I sit here wondering why any doctor in their right mind would have a 4 year old in office, awake, having this procedure done. I remember the day like it was yesterday. Laying on the table, my dad in a chair beside the table, and the doctor and nurse ready to insert the tube inside of me. After inserting the first tube, I went crazy, to be expected. Most adults cannot stand a catheter being inserted in them, but I was only a child. I screamed and kicked and the doctor called for more nurses to come in and hold me down. They did as he told them, and each held an arm and leg. Just sit back and imagine this... you as a child and this happening to you. You have lost all control of your own body. This was the first time that I had control taken away from me. It's hard to take it all in even to this day. Moving along, I was then put in the hospital, put to sleep, and had the procedure. This is how it should have been to start with. No trauma, nothing scary, the hospital made it fun. I am sure you are thinking, "What parent would allow this??" Well, as any parent would, mine wanted me better. I am not sure that they even understood what was going to take place. I place no blame on them, I just wonder what that doctor was thinking. Fast-forwarding 23 years later, my doctor thinks that this in office procedure is when I had nerve damage from the catheter. This event changed the way I feel and see "normal".
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